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Anencephaly- The worst news we have ever had.
February 7, 2013 at 3:15 PM


Baby is doing well inside there. He is very active. I have another US on the 21st to check on my fluid levels. VERY active baby. I am doing okay just a rough rut emotionally. We have decided to carry to term so that we can say our goodbyes. We will cremate as well. I am happy that we decided to carry and we can say goodbye and be at peace with it. I am still coming to terms with the fact that we will not be coming home with a baby. =[

 orig post:

I went in to my doc today for a regular OB appt. She was great then talked to me and asked if I would like to have the early US for down syndrome.I said sure! I was able to get into the US immediately. I found out the most devastating news I have ever heard.

My baby has no brain. My baby will not live. I have the option to terminate or have complications with pregnancy later or..possible hemorrhage durring birth and as soon as I go into labor my baby will die. The correct term for this is Anencephaly. We are going on the 13th to get the process started. I feel dead inside.

ETA- I am going Monday to another specialist to "be sure" but we already know after seeing 2 docs that this is what is going on..Please respect my decision on what we are doing. I keep seeing comments like how babys live for a few years with this. Well IF my baby lived, it would be a vegetable. And for those saying- Check your options- There are two options :

1- my body will produce more amniotic fluid than normal. This can cause my uterus to expand more than a normal pregnancy and I can hemmorage when I deliver. I will chance my life. My baby will die either way.

2- Induce to terminate. And try for another baby in the future.

Please respect my decision. You do not know what you would do unless this happened to YOU and your family personally.


  • katie11908
    February 7, 2013 at 3:16 PM

     Oh no im so sorry :( HUGS!

  • Raeann11
    February 7, 2013 at 3:18 PM

    I am sorry

  • tyrelsmom
    February 7, 2013 at 3:25 PM
    I'm so sorry. A woman DH went to school with had that. She chose to continue the pregnancy. The baby died during birth when she went into labor at 28 weeks. So sad :(.
  • CelestialSong
    February 7, 2013 at 3:28 PM
    Oh my goodness I am so sorry :(
  • ShutterFreak03
    February 7, 2013 at 3:28 PM
    Im srry! Hugs.
  • Yogamom08
    February 7, 2013 at 3:28 PM
    I am so sorry. I don't have words....

    Please type "Loving London" in to google and look for the Facebook page. This couple has just gone through the loss of their child from the same condition. I would definitely get some support from people who have gone through thus
  • Star127
    by Star127
    February 7, 2013 at 3:48 PM
    Im so sorry, my heart goes out to you and your family :(
  • xLilBit22
    February 7, 2013 at 3:51 PM
    I am truely sorry. I read the title and got teary-eyed. Hugs to you.
  • rachelrothchild
    February 7, 2013 at 4:05 PM

    I have a friend who went through this not too long ago.  She gave birth to her baby around 24 weeks.  I'm sorry.  Just don't think it's something you did.  Grief counseling would probably be helpful.

  • AmericanChild82
    February 7, 2013 at 4:19 PM

     I am so sorry sweety!


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