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JOEJULA
THE DOCTOR SAID THAT MY BABY WAS BLIND *update*
by JOEJULA
December 3, 2008 at 2:10 PM

i WENT TO THE DOCTOR TODAY TO GET MY TWO MONTH OLD A WELL CHECK AND HE TESTED HER VISION, AND SAID THAT SHE IS NOT FOLLOWING OBJECTS OR FOCUSING ON HIS FACE. SHE ALSO MAKES RAPID EYE MOVMENTS AND WILL NOT LOOK AT ANY THING. I AM COMPLETLEY DEVESTATED. I AM GOING TO THE OPTHAMOLOGIST TODAY AT 2 TO CONFIRM DIAGNOSIS AND TO GET ANOTHER OPINION. HAS ANY DELT WITH THIS TYPE OF THING BEFORE. IF YOU HAVE PLEASE TELL ME YOUR OUTCOME. THANKS.

 

 Update:

It was confirmed by an opthamologist yesterday that my little baby girl can not see. She is    partly albino and has no pigment in her eyes. She can only see light and dark. I have been crying now since yesterday. The thought that she will never see my face just kills me.I just wanted  her to be able  to see the ocean, the mountains, her children when she has them. I know she can see in other ways,but it just dosnt feel the same. We are going to a specialist to see if their is anything we can do. I try not to blame myself but you wonder if its something that I have done to do this to her. Like all the times I went to the hospital for contractions and   they shoved  terbutaline and pain meds in me over and over. I dont know. I just know that she is a wonderful child and can do anything she puts her mind to.Thanks for all the support if you have any more stories please keep them coming they give me so much hope for her.

LOVING MOMMY TO ADAYLNN BORN SEPTEMBER 10, 2008

Replies

  • mama2jarednrae
    December 3, 2008 at 2:14 PM

    Sorry mama!!  Hope the best for your lil one!!!

  • LoveMy2Boys426
    December 3, 2008 at 2:24 PM

    Yes, my son is blind. When he was 2 months they noticed he didn't follow objects or focus and he saw the eye doctor at 3 months.  We were expecting it though because he had a stroke during birth that destroyed the parts of his brain that controls vision and motor skills.  He now has cerebral palsy.

    It's not as bad as you think.  You get used to it.  My son has cortical blindness or cortical visual impairment, depending on who says it.  We live in NC.  The Governor Morehead School For The Blind comes to our home every Friday and works with him.  He is 15 months now and can see green and blue!  You can PM me if you want.

  • youngmom33
    December 3, 2008 at 2:38 PM

    Oh I'm sorry I know that must be hard to swallow. I thought my baby was going to be deaf but he passed his 2nd hearing test and I was so reileved. but if he is you will adapt and it will be normall for him since that is all he knows.

  • renee3218
    December 3, 2008 at 2:40 PM

    I am soo sorry! I hope the best for her! let us know what they find out. Good Luck

  • connorlove
    December 3, 2008 at 3:33 PM

    im sorry

  • saralouise
    December 3, 2008 at 6:30 PM

    I'm sorry you have to go through this. if your lil one really is blind, don't worry. There are so many resources out there to help disablilities like this. Does your baby look at you when she eats or anything? that would be an indicator if she does then she's not blind. at least not fully. good luck to you and your lil one xxx

  • marchand_84
    December 3, 2008 at 6:55 PM

    I sure thats overwhelming. But from what I have heard...especially since she is so young...that her other senses will be much more enhanced...maybe she will be a super talented musician...or will have skills in the future to sculpt beautiful things. or cook the most unique flavorful dishes ever. sometimes something so devastating can actually be a blessing in disguise. my thoughts go out to you..and good luck.

  • mamaellie1979
    December 3, 2008 at 9:35 PM

    my now 7 year old daughter just had surgery because she was shaken by a good friend of mine (well he was at the time) and her eyes were badly damaged, they went in and did a repair and now she can see, she's still got patchwork to build up the nerves that are newly repaired so she doesnt have to wear glasses when she gets to be older

  • SRLPrincess1067
    December 4, 2008 at 12:35 AM

    I'll be honest with you........... it's tough growing up with a vision impairment but not impossible! I did. I am blind in one eye completely and almost blind out of the other. A previous mom mentioned about senses, and I have an almost perfect sense of hearing (when I want to LOL).

    I just wanted to tell you that we found out that there was a surgery that could have fixed me and made me see but it had to be done before I was 7. Guess what........ I was 7years and 3months the day we found it. So.... do ALL of your research. There is a vixion center in VA (I am not familiar with it personally, but a friend mentioned it to me a few years back) that apparently is the best in the country, so hopefully knowing about it early, you can at least give your baby a chance.

    Please don't EVER hold your baby back because of a silly little impairment. It is possible to do ANYTHING, and my mom babied me so much that it affected me all the way into adulthood. She always told me what I can't do, but never what I CAN do..........Just a thought.

    Prayers to you and yours.

  • mamalisa0217
    December 4, 2008 at 12:05 PM

    I am so sorry that you are having to go through this. It will be an adjustment but always remember that this is a bleesing in disguise and God will put His hands to work for your little girl. Your family will be in my prayers.

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