This is Austin Carl (or Austin's Odyssey) and he is 2.5 years old. He
was born on Halloween of 2010 6 days late. I had wanted a regular birth
and my placenta stopped working properly a few days before he was born,
detached, and the umbilical cord was wrapped around his neck. When he
was born he was born blue. He was transferred out of my hospital St.
Annes' and transferred to Nationwide Children's after a day and a half
because he had his first seizures. He was diagnoised with Hypoxic
Ischemic Encephalopthy (brain damage) and was one of the worse cases of
brain damage they have seen.
In the years to come we were diagnosed with Spastic Quadriplegic Cerebral Palsy,
Epilepsy including rate seizures that constantly plague our lives
Infantile Spasms that make him regress. CVI (cortical visual
impairment), Laryngomalacia, tracheamalacia, failure to thrive, g/j
tube, GERD, Torticollis, vision abnormalities, dysphagia, deformation
plagiocephaly, sialorrhea, developmental delay, elevated blood pressure,
had 2 bowel obstructions (this year), aspiration pneumonia, small air
way disease, hypertonia, stridor. He has had 5 surgeries this year
including his tracheostomy which allows him to breath better by himself.
He has to be on a pulse ox 24/7 to keep his stats,
has a suction machine that we have to do every half an hour at the very
least, a vest machine that helps break his secretions up, a feeding pump
to feed him, oxygen in the home, bipap machine, a wheel chair (as of Sept 16th when he gets it), and a cool mist machine
you are blessed with you dh & even your son of course.. im sure you are finding a lot of strength through this. i wish you had it easier though.. thanks for sharing your story. bless you & your sweet boy. i love the 2cd pic.. he looks like he is smiling?
Oh I figure God has a plan for us and I am so blessed to have my wonderful husband. He's an amazing person and has taught me soooo much.