everyone who has epilepsy

SydElliesmom
Is this group still going?
November 28, 2007 at 6:04 PM
I am looking at the posts and they end a while ago.  I was so happy to find this.  I have petite mal seizures.  Thank god I don't have grand mal-I sometimes hate to complain about mine after I read what others have gone through.  I started having these after my first daughter was born 6 years ago.  They don't know why-there were no complications that we knew of.  I just have small deja vus and my body gets really warm.  I am usually so tired after I have them.  If I can rest after, then I am usually okay.  I have them about once a week.  My meds have been changed a million times-and since I used to have about 10 a day-I should be grateful.  Somedays I am, somedays I am not.  I am happy to find this group-I need to be able to cry to women who know what's going on!  I hope the group is still going.  Let me know if any one is still active.
Thanks,
Heather

Replies

  • kymbernv
    November 28, 2007 at 6:16 PM
    I'm still here :o) Not sure where everyone is though!! Any type of seizures is hard to deal with until you find a med that works for you. What are you taking? I took tons until I found one that controls my seizures.
    Kymber

  • Cher53
    by Cher53
    November 26, 2012 at 9:53 PM

     

    Quoting kymbernv:

    I'm still here :o) Not sure where everyone is though!! Any type of seizures is hard to deal with until you find a med that works for you. What are you taking? I took tons until I found one that controls my seizures.
    Kymber

    Hi Kymber

    I am here daily so if you have any questions please post them I will address them as soon as possible. I am curious to know what meds you were on and what finally controlled your seizures?

    I am 22 years seizure free ave been on dilantin 100mgs3xday 250mgsmysoline3xday for over 35 years. Now I am on dilantin 100mgs 2xday and mysoline 250mgs2x day. et me know I am really interested.

everyone who has epilepsy