Limited Edition Kids

briansmom123
Seziures
August 5, 2012 at 4:03 PM

Hello Ladies,

I am having a problem.  My son is 16 and recently had a decline in his functioning,  he is verbal but seems distracted and often confused and disoriented and often overwhelmed with the simplest of situation.   We have seen a neurologist and had a full workup, blood work and MRI, and genetic testing.  The results showed that there was no abnormality.   He continues to have these problems, the biggest issues is that he says that he gets dizzy and falls down,  no head injury, just bruises and scrapes.  When I try to ask him about it he can not explain what he fells or why it happens,   He is autistic and has bipolar, and severe adhd.  Should we try and find anther neurologist, could he have missed something?   Any suggestions??  

Replies

  • cjsk
    by cjsk
    August 5, 2012 at 6:29 PM
    Has anyone done an eeg on him? It definately sounds like seizures to me. DD has seizures that we call her "falling down" seizures. They only last a couple of seconds, but that is long enough to make her fall down. She doesn't lose consciousness she just loses her ability to stay upright.
  • briansmom123
    August 5, 2012 at 7:37 PM

    The neurologist did not do an eeg, because he said that to get a good reading he would have to sedate him and then it would not show anything, my son is very hyper and can not sit still.   Thank you for you input.

     

  • LadybugsMonkeys
    August 6, 2012 at 9:53 PM
    How long has it been since his last eye exam? Maybe consider a specialist to do an indepth eye exam. Also possibly see an ENT to see if there is anything with his equilibrium.
    It sounds like something neurological, to me.
  • briansmom123
    August 6, 2012 at 10:24 PM

    He just had a through eye exam with a ped. opthamaologist last month, no problems there.   He get dizzy and says his head feels funny. I am thinking that it is neurological but since we have seen a highly recommeded one, I am wondering where to go from there,  and the fact that he is autistic and can tell us what is going on.  

     

  • Ammie25
    by Ammie25
    August 17, 2012 at 12:11 AM

    I think the ladies here have probably made great suggestions. I don't know what to tell you as far as a diagnoses goes...but you need to continue to "doctor hunt" until you find someone that is dedicated enough to FIGURE OUT what is going on, and doesn't just do one procedure, say he's fine, and send you on your way. There are great doctors out there who will give you the time and patience and knowledge and willingness to LEARN  & figure things out...but you have to find them. It's like finding a needle in a haystack. And your son definitely deserves it. He cannot tell you what is happening...even if he knew, his disabilities may prevent him from being able to fully express it. Protect & advocate mama! Great job so far!

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