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lovelove211
Does anybody else here have ocular hypertension
March 19, 2013 at 9:07 PM
My eye pressure has risen significantly in this past year, I've had every test and my eyes are healthy so not yet glaucoma but a glaucoma suspect, I was put on xalatan eye drops to lower the pressure however they have made my eyes blood shot, does anyone else have this? Is the blood shot eyes temporary? Can I do anything to help with this? Also, if you also have what I have but not glaucoma are the eye drops permanent? I failed to ask all of this at my appointment and am unable to speak to my specialist until next week

Replies

  • lovelove211
    March 19, 2013 at 9:22 PM
    Bump
  • megandwade
    March 19, 2013 at 9:39 PM

    I have no answers for you sorry.. but you are the only other person I've ever met who even knows what this is!

    My son is 2 and has Megalocornea which often causes ocular hypertension. I know this can cause the glaucoma and detached retina. His eyes are healthy so far but at his last appoint the pressure was slightly elevated but they couldn't get an honest reading because he was crying which elevates the pressure. We go back the 1st of May to have the pressure checked again and if they are unable to get a reading they may have to put him under anesthesia! I've very nervous about this! It's nice to hear that if the pressure reading does come back high atleast they can give him drops to lower it? We haven't gotten that far with discussing treatment yet!

  • lovelove211
    March 19, 2013 at 10:46 PM
    I agree, most people don't know what it is. If you like I can update you on how my treatment goes? I have a thicker cornea which causes it to be slightly higher however the pressure has elevated even more. I do know that my optometrist has great faith in the drops so if your son gets to a point where it's to high drops are an option and mine are only once a day. I hope his next appointment goes well for you both


    Quoting megandwade:

    I have no answers for you sorry.. but you are the only other person I've ever met who even knows what this is!

    My son is 2 and has Megalocornea which often causes ocular hypertension. I know this can cause the glaucoma and detached retina. His eyes are healthy so far but at his last appoint the pressure was slightly elevated but they couldn't get an honest reading because he was crying which elevates the pressure. We go back the 1st of May to have the pressure checked again and if they are unable to get a reading they may have to put him under anesthesia! I've very nervous about this! It's nice to hear that if the pressure reading does come back high atleast they can give him drops to lower it? We haven't gotten that far with discussing treatment yet!


  • megandwade
    March 20, 2013 at 4:34 PM

    Thank you! I would greatly appreciate it if you would keep me updated on your treatment! I was really surprised to find your post! I've posted about this before but never received any replies. 

    I've been concerned about how this will affect his vision in the long run. So far the doctor has just told us we will have to get his eyes checked often and right now the major concern is getting the correct pressure reading.

    I know the Megalocornea is when the cornea measures larger than 13mm. We always knew he had large eyes but we didnt realize there was anything medically different about them. The opthamologist has told us this is extremely rare. Is this like what you have?


    Quoting lovelove211:

    I agree, most people don't know what it is. If you like I can update you on how my treatment goes? I have a thicker cornea which causes it to be slightly higher however the pressure has elevated even more. I do know that my optometrist has great faith in the drops so if your son gets to a point where it's to high drops are an option and mine are only once a day. I hope his next appointment goes well for you both


    Quoting megandwade:

    I have no answers for you sorry.. but you are the only other person I've ever met who even knows what this is!

    My son is 2 and has Megalocornea which often causes ocular hypertension. I know this can cause the glaucoma and detached retina. His eyes are healthy so far but at his last appoint the pressure was slightly elevated but they couldn't get an honest reading because he was crying which elevates the pressure. We go back the 1st of May to have the pressure checked again and if they are unable to get a reading they may have to put him under anesthesia! I've very nervous about this! It's nice to hear that if the pressure reading does come back high atleast they can give him drops to lower it? We haven't gotten that far with discussing treatment yet!




  • lovelove211
    March 21, 2013 at 8:00 PM
    Pretty much, I think I was about 12 when my high pressure was noticed so I was sent to a specialist and told I have a thicker than average cornea, however having this gives your eyes slightly more protection but can increase eye pressure even more. I'm now 24 and it has only been in the past year my eye pressure has crept up, I think it's now 28 which is why I've been put on drops, my eyes have no damage so the drops should prevent that. Does your so have any other tests? I had my pupils dilated to look into my eye and also photographs done on the back of my eye. It is scary to think about especially since your son is so young but the good news is that you found it early, so monitoring and if he needs treatment later on his eyes will be perfectly fine. I'm happy to have found someone who can relate to this (not happy that you have to experience it) though


    Quoting megandwade:

    Thank you! I would greatly appreciate it if you would keep me updated on your treatment! I was really surprised to find your post! I've posted about this before but never received any replies. 

    I've been concerned about how this will affect his vision in the long run. So far the doctor has just told us we will have to get his eyes checked often and right now the major concern is getting the correct pressure reading.

    I know the Megalocornea is when the cornea measures larger than 13mm. We always knew he had large eyes but we didnt realize there was anything medically different about them. The opthamologist has told us this is extremely rare. Is this like what you have?



    Quoting lovelove211:

    I agree, most people don't know what it is. If you like I can update you on how my treatment goes? I have a thicker cornea which causes it to be slightly higher however the pressure has elevated even more. I do know that my optometrist has great faith in the drops so if your son gets to a point where it's to high drops are an option and mine are only once a day. I hope his next appointment goes well for you both





    Quoting megandwade:

    I have no answers for you sorry.. but you are the only other person I've ever met who even knows what this is!

    My son is 2 and has Megalocornea which often causes ocular hypertension. I know this can cause the glaucoma and detached retina. His eyes are healthy so far but at his last appoint the pressure was slightly elevated but they couldn't get an honest reading because he was crying which elevates the pressure. We go back the 1st of May to have the pressure checked again and if they are unable to get a reading they may have to put him under anesthesia! I've very nervous about this! It's nice to hear that if the pressure reading does come back high atleast they can give him drops to lower it? We haven't gotten that far with discussing treatment yet!







  • megandwade
    March 23, 2013 at 11:57 AM


    We've only been to the opthamologist twice so far. Both times they did the drops to dilate his eyes. They were able to look at the back of his eyes during the first visit and said everything looked healthy and strong. It was during this first visit we found out he had the Megalocornea. They were only able to get the pressure reading from one eye as he was fighting and crying the whole time, they said the pressure was elevated. Then we were sent to the Childrens Hospital for the second visit were we met with the geneticist who did some blood work on the little guy and talked to us about the condition, but again the doctor wasn't able to do much because DS was so worked up. They did the blood work to make sure the Megalocornea isn't apart of a larger syndrome... and to see if it's something that is genetic.

    They said if they weren't able to get a pressure reading at our next visit we would have to consider putting him under to get it. It has me sort of worried though because in the mean time, after this last visit they called and said they would like us to see a different genetic / opthamologist specialist so we are going to see this doctor on the 1st of May. When I asked why they wanted us to see this other doctor they just said they thought he was a good canidate.. so I'm not sure what that means!

    Quoting lovelove211:

    Pretty much, I think I was about 12 when my high pressure was noticed so I was sent to a specialist and told I have a thicker than average cornea, however having this gives your eyes slightly more protection but can increase eye pressure even more. I'm now 24 and it has only been in the past year my eye pressure has crept up, I think it's now 28 which is why I've been put on drops, my eyes have no damage so the drops should prevent that. Does your so have any other tests? I had my pupils dilated to look into my eye and also photographs done on the back of my eye. It is scary to think about especially since your son is so young but the good news is that you found it early, so monitoring and if he needs treatment later on his eyes will be perfectly fine. I'm happy to have found someone who can relate to this (not happy that you have to experience it) though

  • lovelove211
    March 23, 2013 at 1:49 PM
    I'm not sure what that means either however I would go, it may this doctors way of Saying he doesn't really know how to deal with this, you may get some answers you're looking for and think of it this way, they may have a much better idea of treatment, also if you go to a specialist he\she may be able to explain it better and like I said give you answers, you may come out feeling much better.


    Quoting megandwade:


    We've only been to the opthamologist twice so far. Both times they did the drops to dilate his eyes. They were able to look at the back of his eyes during the first visit and said everything looked healthy and strong. It was during this first visit we found out he had the Megalocornea. They were only able to get the pressure reading from one eye as he was fighting and crying the whole time, they said the pressure was elevated. Then we were sent to the Childrens Hospital for the second visit were we met with the geneticist who did some blood work on the little guy and talked to us about the condition, but again the doctor wasn't able to do much because DS was so worked up. They did the blood work to make sure the Megalocornea isn't apart of a larger syndrome... and to see if it's something that is genetic.

    They said if they weren't able to get a pressure reading at our next visit we would have to consider putting him under to get it. It has me sort of worried though because in the mean time, after this last visit they called and said they would like us to see a different genetic / opthamologist specialist so we are going to see this doctor on the 1st of May. When I asked why they wanted us to see this other doctor they just said they thought he was a good canidate.. so I'm not sure what that means!


    Quoting lovelove211:

    Pretty much, I think I was about 12 when my high pressure was noticed so I was sent to a specialist and told I have a thicker than average cornea, however having this gives your eyes slightly more protection but can increase eye pressure even more. I'm now 24 and it has only been in the past year my eye pressure has crept up, I think it's now 28 which is why I've been put on drops, my eyes have no damage so the drops should prevent that. Does your so have any other tests? I had my pupils dilated to look into my eye and also photographs done on the back of my eye. It is scary to think about especially since your son is so young but the good news is that you found it early, so monitoring and if he needs treatment later on his eyes will be perfectly fine. I'm happy to have found someone who can relate to this (not happy that you have to experience it) though




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