Mom Confessions

Anonymous
Undiagnosed autism?
by Anonymous
February 7, 2013 at 8:26 PM
My nephew is going to be 5 next month. He doesn't say a single word. He is still in diapers and he shows no emotion. He still chews on everything. Everyone in the family says he has autism...everyone except his parents. They say his pediatrician says its normal. They were supposed to see a specialist over a year ago and never went. My fear is they are just going to try and throw him in a normal kindergarten class and he is going to have such a hard time. He needed to be getting help two years ago and I feel its too late. It seems as if they don't want to accept that there is something wrong with their child.

Replies

  • sweetboys4me
    February 7, 2013 at 8:29 PM
    The school will have him tested before placement and refer him. They do not just put kids in based on age
  • Anonymous
    by Anonymous - Original Poster
    February 7, 2013 at 8:32 PM
    Quoting sweetboys4me:

    The school will have him tested before placement and refer him. They do not just put kids in based on age



    I know that. I'm just afraid he is going to be so far behind that he is just going to have an extremely tough time in school. I know that is probably true for any autistic child but it could be less if they got him help two years ago.
  • sweetboys4me
    February 7, 2013 at 8:46 PM

    I completely understand that. Just to assuage any fears, he will not be mainstreamed.  he will finally be getting the help he needs.  My pedi wasn't too concerned with my 3 yo's delays but did refer us to a specialist.  I dragged my feet as well for fear of a label.  What's done is done.  He will now be getting the services he needs.  His delays cannot be ignored anymore.  This is a positive thing.  I am just trying to encourage you and help build you up.  It is not too late.  Hugs and prayers for the little guy.  If you ever need to vent, feel free to msg me :)  It is scary.  I know I'm there myself.  Cried my heart out even today.  Sometimes its mentally easier to think you are seeing progress in your lo even if it's not happening.  Please do not fault his parents.  They need your support more than ever.  Best wishes


    Quoting Anonymous:

    Quoting sweetboys4me:

    The school will have him tested before placement and refer him. They do not just put kids in based on age



    I know that. I'm just afraid he is going to be so far behind that he is just going to have an extremely tough time in school. I know that is probably true for any autistic child but it could be less if they got him help two years ago.



  • Anonymous
    by Anonymous - Original Poster
    February 7, 2013 at 8:52 PM
    Quoting sweetboys4me:




    I'm trying not to take it out on them, but they know there is something wrong they just don't want to admit it. I have a child with cp and when I found out I was devastated, but I could have never not found out what was wrong. I guess everyone is different with finding out this kind of news. He has been I therapy over a year and has made such awesome progress...progress he probably wouldn't have made if he wasn't in therapy.

    Thank you for the kind words. I'm trying to accept that they are probably just scared to learn the truth, but I just feel for this little boy who has a condition that he can't do anything about.
  • brandydesiree
    February 7, 2013 at 8:53 PM
    Really? They just stuck my son in a kinder class. No testing.


    Quoting sweetboys4me:

    The school will have him tested before placement and refer him. They do not just put kids in based on age

  • brandydesiree
    February 7, 2013 at 8:57 PM
    Ah, I'm sorry. My son has high functioning autism, and has some behavioral problems. I HATED the news and didn't want to believe it. However, once I accepted it, it's been so much easier to understand and communicate with my son. He is in regular classes in school, but has a one on one aid with him.
  • sweetboys4me
    February 7, 2013 at 9:30 PM
    My oldest is in kindergarten this year. When we registered him they did basic testing for letter and number recognition, top of page bottom of pages in a book. Just basics so they could place him in the appropriate class. Hes normal functioning tho. My youngest has delays and not officially asd labeled yet. Hes 3 and in special needs preschool. If her nephew is that low functioning, they would never just put him in a regular classroom (I would think)
    Quoting brandydesiree:


  • sweetboys4me
    February 7, 2013 at 9:42 PM


    At least he has had some therapy.  I cannot imagine ignoring it either.  I admit that I did drag my feet.  My son turned 3 last May, but he was already getting speech services through the Babies can't Wait program and then would be handed over to the school district.  So there was a four month gap.  I probably should have taken him to a pediatric neurologist in that time, but I can't change that now.

    How severe is your childs cp?  How are they doing?  At least you can offer support being that you have first hand experience with a disability. Hugs and prayers for your lo as well

    Quoting Anonymous:

    Quoting sweetboys4me:




    I'm trying not to take it out on them, but they know there is something wrong they just don't want to admit it. I have a child with cp and when I found out I was devastated, but I could have never not found out what was wrong. I guess everyone is different with finding out this kind of news. He has been I therapy over a year and has made such awesome progress...progress he probably wouldn't have made if he wasn't in therapy.

    Thank you for the kind words. I'm trying to accept that they are probably just scared to learn the truth, but I just feel for this little boy who has a condition that he can't do anything about.



  • AylinsMom
    February 7, 2013 at 9:44 PM

    OMG..... ! My daughter was speech delayed. Let me just say this: "kids are to learn or have 90% of functional language by age 5 ! CALL the school and get him into an early childhood program. ASAP What kind of Dr. would say that was normal ?

  • Anonymous
    by Anonymous
    February 7, 2013 at 9:46 PM
    Does that mean my nephew might be autistic? He still acts like a baby and doesn't talk yet
    I think him and my 1 year old act the same and babble the same way.

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