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I feel like I'm gonna be sick. (sad update on DD)
December 12, 2012 at 5:03 PM

DD has been completely unable to tolerate her feedings. She already has a fundoplication and a GJ tube, but she can't even handle 15ml per our of just Pedialyte. She can't handle full strength, or even half strength formula at all. 

They've tried several different meds to get her bowels moving again, but none have worked. She's on TPN (IV nutrition), but they are VERY reluctant to send her home on that due to her high risk of infection or damage to her PICC line.

I have to choose between taking her home on TPN and running a very high risk of her getting an infection in her PICC line and getting sepsis. Or We can give her dilluted formula continuously at 10ml per hour, just enough to keep her from feeling hungry, and just let nature take it's course. 

I feel like I've been punched in the gut...


  • GhettoKoolAide
    December 12, 2012 at 5:04 PM
    Holy moly mama I'm so sorry.
  • Ashley_Carlson
    December 12, 2012 at 5:06 PM


  • bluesky51201
    December 12, 2012 at 5:07 PM
    Oh Ashley I am so sorry. I hate hate hate hate that you and your sweet girl are going through this.
  • Amy_M
    by Amy_M
    December 12, 2012 at 5:07 PM


  • Denecia
    by Denecia
    December 12, 2012 at 5:07 PM
    I am sorry. Just do what feels right to you.
  • km1970
    by km1970
    December 12, 2012 at 5:07 PM

     I am so sorry..those are choices no parent should ever have to make.

  • reava
    by reava
    December 12, 2012 at 5:08 PM
    Hugs momma. Sorry you got more bad news.
  • I_Love_Pooh1999
    December 12, 2012 at 5:08 PM
    Oh no. I am so sorry to hear this. Your family will be in my prayers.
  • Louisianamom88
    December 12, 2012 at 5:08 PM
    I'm so sorry
  • ColieO
    by ColieO
    December 12, 2012 at 5:09 PM

    That's so rough.

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