Raising Special Needs Kids

What type of apts does your child have and why?
June 29, 2013 at 7:21 AM
My son sees a Rehabilitation Doctor due to having Cerebral Palsy Gastrologist-encopresis Neurologist-right now diagnosed with migraines Orthotics/Prothotics-braces Rehabilitation Places-for his medical equipment-wheelchair, special bed, walker, commode-etc (and adding hoyer lift hopefully soon -in the process) Primary Care Physician-as needed Health Care Agency-for care in the home Chiropractor-alignment/back Lifeskills agency Opthamologist Specialist-eyes Pediatric Dental Specialist-he is unable to go to a regular dentist-he needs special care and soon he will be transferred to an Adult Dental Specialist-which is still 2 hours from our home County Worker-to monitor health care agency, lifeskills agency, equipment not paid through medical assistance, and respite Those are the main ones I can think of seen on a regular basis


  • arkansasmama08
    June 29, 2013 at 9:40 AM
    Zachary has aspergers. Right now he's not in any therapy so his most current appointments are with Children's to get his medical diagnosis. He also gets X-rays every 6 months now to monitor his scoliosis.
    Maggie sees a ot, pt, and special Ed during the year. Shes also been evaluated by a st abd behaviorist and will have testingbthrough the sumner. She's also been to an allergist and ortho.
    Jeremiah has the long list. He sees a GI and pulminologist every couple of months. He also sees a pt and ot during the year, and will be evaluated by the same behaviorist as his sister during this summer. We have to take him to the heart clinic next week to check for a murmur, so we may have to add cardiologist to his list :(
  • mlogsdon
    June 29, 2013 at 10:08 AM

    Cardio- has a heart murmur. Neuro- has PVL. Ophthalmologist- nearsighted lol. Geneticist- still havent found the underlying cause of everything. GI- Eosinophilic Esophagitis. ENT- laryngomalacia, had trach. Delopmental clinic- global developmental delays. Regular peds as needed. Speech therapy, feeding therapy, physical therapy, occupational therapy. 

    I think thats it :)

  • charley31
    June 29, 2013 at 10:20 AM
    Ryan sees his developmental pediatrician and autism psychologist for the aspergers.
    He sees a neuro and eye dr @ chop for his tic
    He has his behaviorist every week
    Pulmonary for asthma but he has been doing great knock on wood...
    We are done with gi finally and cardio clearled him...he has an enlarged heart but they said electrically it works great.
  • Mipsy
    by Mipsy
    June 29, 2013 at 11:16 AM
    GI- food allergies, constipation, dysmotility, gtube, dysphagia

    Pulmonology- asthma, tracheobronchomalacia, dysphagia

    Neurology- developmental delays, epilepsy

    Genetics- suspects mitochondrial disease

    Special Needs pedi- normal stuff, mitochondrial disease symptom stuff

    Developmental pedi- evaluation

    Behavioral counselor- behavioral therapy, family counseling to help behavior

    Allergist- food allergies, environmental allergies, asthma, eczema

    Cardiologist- heart murmur

    Endocrinologist- hypoglycemia

    Then just speech therapy now at home and school. Graduated occupational therapy!
  • Linagma03
    June 29, 2013 at 6:32 PM

    Lina has her family dr. who sees all of us for the routine things. He also choreographs the referrals to the specialists. 

    Neuro--seizures, lesions on the left hemisphere of her brain.

    Nephrology--enlarged kidneys, & cysts on right kidney

    Hypertension--very high blood pressure


    Cardiologist--monitoring her heart due to bp issues

    Optometrist--regular screening and glasses

    Opthomology--as needed as for any issues that Eye dr finds

    Audiology--yearly hearing test & hearing aids

    Geneticist--she sees him every 3 years unless we need to see him sooner

    Developmental--she sees him as needed he said he wants to start seeing her every 3 years now unless we have problems

    GI--this is new so I don't know if he is going to be added to the list or not

  • jjamom
    by jjamom
    June 29, 2013 at 7:18 PM
    Cardiologist - for monitoring of a repaired heart defect (with device implanted), pulmonary hypertension and a small leak in one of his valves.

    Endocrinologist - he has hypothyroidism

    Feeding clinic/GI - for ongoing feeding issues and reflux

    Opthamologist - for regular vision checks. He doesn't have glasses yet, but already has slight vision issues and will need them in the future.

    Orthotist - he wears orthotics due to pronating and ligamentous laxity in his feet and ankles.

    We used to see ENT, pulmonologist and geneticist regularly, but now see them each every few years for check ups.

    I think that's it. Well, besides therapies.
  • T-HoneyLuv
    June 29, 2013 at 7:32 PM
    Urology- Neurogenic Bladder, stoma
    Nephrology-Chronic Kidney Failure
    Gastroenterology-Complicated bowel and intestinal dysfunction, Gastroparesis, GERD, liver problems
    Infectious Disease- Chronic Infection
    Rheumatology- Joint pain
    Ortho-Joint pain
    Palliative at one point for pain management
    Hematology for anemia ( pending )
    ENT- sleep apnea
    Derm- eczema ( harbored staph )
    Gen Surgery- picc line
    Pedi - everything else.
  • darbyakeep45
    June 30, 2013 at 8:29 AM

    Pulmonology - Cystic Fibrosis, Asthma

    Neurology - Seizure Disorder, Brain Damage/Abnormalities

    Endocrinology - Short Stature, *possible Pituitary Dwarfism, growth hormone deficiency 

    GI - G-tube, Gastroparesis, Constipation

    ENT - ear tubes, chronic ear infections, Sinus Disease

    Opthamaology - Strabismus

    Neurodevelopmental Pediatrician - Autism, Aarskog Syndrome, 16p Chromosome Duplication

    Pediatric Surgery - G-tube, Hidden Penis

  • darbyakeep45
    June 30, 2013 at 8:29 AM

    Occupational, Physical, Feeding, and ABA therapies...currently on waiting list for Speech therapy

  • mommyto3121405
    June 30, 2013 at 8:59 AM

    my son goes every 6 months to a developmentalist due to him being asd. he gets pt, ot and speech at school

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