Zachary has aspergers. Right now he's not in any therapy so his most current appointments are with Children's to get his medical diagnosis. He also gets X-rays every 6 months now to monitor his scoliosis.
Maggie sees a ot, pt, and special Ed during the year. Shes also been evaluated by a st abd behaviorist and will have testingbthrough the sumner. She's also been to an allergist and ortho.
Jeremiah has the long list. He sees a GI and pulminologist every couple of months. He also sees a pt and ot during the year, and will be evaluated by the same behaviorist as his sister during this summer. We have to take him to the heart clinic next week to check for a murmur, so we may have to add cardiologist to his list :(
Cardio- has a heart murmur. Neuro- has PVL. Ophthalmologist- nearsighted lol. Geneticist- still havent found the underlying cause of everything. GI- Eosinophilic Esophagitis. ENT- laryngomalacia, had trach. Delopmental clinic- global developmental delays. Regular peds as needed. Speech therapy, feeding therapy, physical therapy, occupational therapy.
I think thats it :)
Ryan sees his developmental pediatrician and autism psychologist for the aspergers.
He sees a neuro and eye dr @ chop for his tic
He has his behaviorist every week
Pulmonary for asthma but he has been doing great knock on wood...
We are done with gi finally and cardio clearled him...he has an enlarged heart but they said electrically it works great.
GI- food allergies, constipation, dysmotility, gtube, dysphagia
Pulmonology- asthma, tracheobronchomalacia, dysphagia
Neurology- developmental delays, epilepsy
Genetics- suspects mitochondrial disease
Special Needs pedi- normal stuff, mitochondrial disease symptom stuff
Developmental pedi- evaluation
Behavioral counselor- behavioral therapy, family counseling to help behavior
Allergist- food allergies, environmental allergies, asthma, eczema
Cardiologist- heart murmur
Then just speech therapy now at home and school. Graduated occupational therapy!
Lina has her family dr. who sees all of us for the routine things. He also choreographs the referrals to the specialists.
Neuro--seizures, lesions on the left hemisphere of her brain.
Nephrology--enlarged kidneys, & cysts on right kidney
Hypertension--very high blood pressure
Cardiologist--monitoring her heart due to bp issues
Optometrist--regular screening and glasses
Opthomology--as needed as for any issues that Eye dr finds
Audiology--yearly hearing test & hearing aids
Geneticist--she sees him every 3 years unless we need to see him sooner
Developmental--she sees him as needed he said he wants to start seeing her every 3 years now unless we have problems
GI--this is new so I don't know if he is going to be added to the list or not
Cardiologist - for monitoring of a repaired heart defect (with device implanted), pulmonary hypertension and a small leak in one of his valves.
Endocrinologist - he has hypothyroidism
Feeding clinic/GI - for ongoing feeding issues and reflux
Opthamologist - for regular vision checks. He doesn't have glasses yet, but already has slight vision issues and will need them in the future.
Orthotist - he wears orthotics due to pronating and ligamentous laxity in his feet and ankles.
We used to see ENT, pulmonologist and geneticist regularly, but now see them each every few years for check ups.
I think that's it. Well, besides therapies.
by T-HoneyLuvJune 29, 2013 at 7:32 PMUrology- Neurogenic Bladder, stoma
Nephrology-Chronic Kidney Failure
Gastroenterology-Complicated bowel and intestinal dysfunction, Gastroparesis, GERD, liver problems
Infectious Disease- Chronic Infection
Rheumatology- Joint pain
Palliative at one point for pain management
Hematology for anemia ( pending )
ENT- sleep apnea
Derm- eczema ( harbored staph )
Gen Surgery- picc line
Pedi - everything else.
Pulmonology - Cystic Fibrosis, Asthma
Neurology - Seizure Disorder, Brain Damage/Abnormalities
Endocrinology - Short Stature, *possible Pituitary Dwarfism, growth hormone deficiency
GI - G-tube, Gastroparesis, Constipation
ENT - ear tubes, chronic ear infections, Sinus Disease
Opthamaology - Strabismus
Neurodevelopmental Pediatrician - Autism, Aarskog Syndrome, 16p Chromosome Duplication
Pediatric Surgery - G-tube, Hidden Penis