My daughter was diagnosed with Metopic Craniosynostosis at 4 months of age and underwent surgery at 6 Months. At no time was the Experimental implant of BMP-2 ever discussed nor acknowledged after continued complaints to her original doctors and staff along with an ER Doctor, ENT, and the head of Neurosurgery. They had requested in May to re-operate on her in July of 2011, if I had allowed that and didn't "find" her answers her entire family would have never known.
I ask you to please share her ideo with as many people as you know.
Oh my goodness! I am so sorry you had to go through all that! The doctors/surgeons/nurses at Cincinnati Children's hospital should be disbarred for what they did to Hailey without your permission. At least you were able to find people to listen to you and found help for her and are now moving forward. Good luck to your family.
We just filed suit last week, we just uncovered that they did not put her "under" and nurses and doctors took over two hours taking multiple turns on her trying to IV, A-Line her before the start of the surgery :(