I ask that you please share my daughter, Hailey Reuter's story. She was diagnosed with simple Metopic craniosynostosis at 4 months of age and underwent an experimental surgery at 6 months of age. It has been a very long journey and continues to be. She has multiple health issues from it. We were never told nor ever told even after the fact by CCHMC, we didn't find out until after 10 months after her first surgery in Dallas TX where a doctor requested to see her medical records. Her case was just filed in court this week and we are allowed to share her story.
Included is a video with detailed pictures and her medical documentation.
I can't even imagine going through that. I am so very glad that you got Hailey the help she needed and so deserved. I pray for her recovery and for your sanity. I hope you sue the crap out of that damned hospital.